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Message: [QUOTE="llandz, post: 1107426, member: 1679"] At some point a couple of years ago I mentioned that my son had crohn's disease. Immediately I got a personal message from Dan. The message is kind of sad to read now as Dan felt he had a magic answer to crohn's in a probiotic that he was taking. He wanted to make sure that my son knew about it. Unfortunately in hindsight I now know it was not the magic Dan thought it was, but I am sure it bought Dan a large amount of time where he felt pretty good. With crohn's disease you go from being in some sort of remission to not and back and forth. My son has never been at 100% since he was 14. Actually he was pretty close after his surgery 3 and a half years ago. In that, his first surgery, he had parts of his intestines removed, and a portion of his stomach wall removed as the intestines were so infected that they attached themselves to the stomach wall. I think my son had about 2-3 perfect weeks. Then he had to start his humira injections which caused another set of problems. Right now my son, who is such a workaholic, is not on any treatment as he is too busy to go to the Dr. for a refill. It took him several extra years to finish college since he had to stop so many times as he was too ill to even leave his apartment for weeks. He is so excited to be living his dream of making video/computer games that he has not taken a day off from work in almost 2 years. As his mother, I am waiting for the other shoe to drop. Every day I wonder if this is the day that I will get the call that he is in the hospital for what will ultimately be his 2nd surgery. He knows that the next surgery will most likely result in a colostomy bag. He finally has come to terms with this. For a while I figured he might commit suicide before getting a colostomy. He now tells me oh yea I know I will have a colostomy bag at some point. I think since he loves working so much and loving what he does he no longer cares as much about it. He is 6 feet tall and has never weighed more that 130 pounds. No matter how much he eats, he does not absorb the nutrients. Right now he is not able to eat a lot of times and he lives on Ensure. And this is considered his "in remission". Medical marijuana is his life saver, whether it is to level off the constant pain he has or enables him the chance to eat. My son just turned 31 years old. What I described above is how he has lived through his later teens and 20s. I know I have been much more graphic than I usually am, but the point is this is what Dan lost his fight to. Dan, like my son, was a really super nice person who had to endure something so much horrible than most of us will ever face. And they endure it for many, many years. Please honor Dan and his commitment to Syracuse sports, Ernie Davis, all of us on this board, and make sure if you live anywhere near Syracuse you attend this event. Arizona is a little too far for me to travel, and I will be helping my other son move from Dallas to Toronto. In future years, I will try to come in from Arizona for this event. If for any reason you can not attend, make sure you look for information as to where to make a donation in Dan's honor and to help others not have the unfortunate end from crohn's and colitis that took Dan from us. Thank you for helping eradicate this awful disease. This is our ice bucket challenge!! Linda [/QUOTE]

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