The tournament was played yesterday afternoon.... from the Orangeyes Open? Curious minds want to know.
Yes, the Colliers again "won" a pair of my courtside tickets in the silent auction. I have never met the Colliers, but I feel like we're best friends because their generosity over many years has initiated many email conversations in which we have worked out dates for the tickets.The tournament was played yesterday afternoon.
It was a other hot, humid day. There was a lot of perspiration. But a lot of good golf was played and many good times were enjoyed.
A number of board luminaries participated. Props to all who dared to try and play golf inside an oven.
The level of completion was high. It appeared the team in front of us might have set a record for beer consumption during a single round. Very impressive.
My team finished 12 under and we thought we were probably going to win, but Craig Kowalda and his excellent team posted -13 late to beat us.
We had 53 golfers all told, with over 70 including the dinner only people.
We raised over 4500. I believe this was the seventh time we played and I believe over $30K has been raised to date. All proceeds go to the Crohn’s and Colitus Foundation of Western and Central NY.
The tournament was held the day after preseason football practice started. The general consensus is that we are going bowling this year and the basketball team has a good chance of returning to the Top 25.
OrangeOnions recognized Chris Gedney, who had Crohns and was supportive of Dan’s battle with this awful disease and later with the tournament itself. We lost you far too early Chris.
I believe the Colliers again won @cto’s tickets, as well as several other auction items. Lots of people were generous, lots of people volunteered to make the event happen, especially members of the Johnson family. Dianne, Dan’s amazing wife, and Kelly, his daughter, were key people was always. Brian’s wife Stephanie and other family members were also great again.
Props to all for a wonderful job.
I am so sorry to read about the damage this disease is doing to your son's life. It is truly an awful disease. That is brutal.I'll be there next year for sure as it coincides with a major HS reunion.
As I type this, my son, who has suffered for many years from Crohn's, is supposed to have another colonoscopy on Wednesday, and at the last minute, Cedars Sinai is requiring him to get a COVID vaccination (messaged him Friday night). Just so you understand the "outside" issues all patients also endure. It is not possible to get said test and have the results before he has to prep tomorrow. (oh, they won't take a rapid test, and expect him to drive to Cedars which is at least a 45 minute drive). Also when you have this disease at the level my son does, it is very difficult to go out at all, as you need to be close to a bathroom. All decisions involve this. So to drive 45 minutes right now to get a test that probably will not be back in time may not even be possible in LA for him. So I am guessing he will have to cancel. This adds stress which is one of the worst things to do to a Crohn's patient. Stress exacerbates the disease. He is constantly having to stress over medications, tests, appointments, trying to reach the Dr. He is 38 years old, and will probably need a colostomy bag in the next couple of years. He has had 2 surgeries already, and the last one was not successful. He has tried every medication they have, and right now is off of all meds so he could get vaccinated.
To add to the stress, he has to get a TB test (a special one) to go back on medication , and he has always tested positive to this test. It is a false positive, and even the infectious disease Dr. that they send him to knows it from a chest xray, but he is required by federal law to treat him for TB. So he takes 3 months of an antibiotic, that he does not need. Oh, and we know one of the side effects of antibiotics.
Just letting you know some of the "fun" of this disease.
Oh, and mom is incredible stressed by the latest turn of events over the weekend. I don't know if he will even continue with treatments, or just let it take its course of destroying his body. Mom hasn't slept in 2 nights.
Thank you to all who participate and donate to this cause. I am so glad I got to know Dan through private messages, and to discuss some of this before the disease took his life.
So sorry about the bureaucracy et al. Hang in there you two and don't give up.I'll be there next year for sure as it coincides with a major HS reunion.
As I type this, my son, who has suffered for many years from Crohn's, is supposed to have another colonoscopy on Wednesday, and at the last minute, Cedars Sinai is requiring him to get a COVID vaccination (messaged him Friday night). Just so you understand the "outside" issues all patients also endure. It is not possible to get said test and have the results before he has to prep tomorrow. (oh, they won't take a rapid test, and expect him to drive to Cedars which is at least a 45 minute drive). Also when you have this disease at the level my son does, it is very difficult to go out at all, as you need to be close to a bathroom. All decisions involve this. So to drive 45 minutes right now to get a test that probably will not be back in time may not even be possible in LA for him. So I am guessing he will have to cancel. This adds stress which is one of the worst things to do to a Crohn's patient. Stress exacerbates the disease. He is constantly having to stress over medications, tests, appointments, trying to reach the Dr. He is 38 years old, and will probably need a colostomy bag in the next couple of years. He has had 2 surgeries already, and the last one was not successful. He has tried every medication they have, and right now is off of all meds so he could get vaccinated.
To add to the stress, he has to get a TB test (a special one) to go back on medication , and he has always tested positive to this test. It is a false positive, and even the infectious disease Dr. that they send him to knows it from a chest xray, but he is required by federal law to treat him for TB. So he takes 3 months of an antibiotic, that he does not need. Oh, and we know one of the side effects of antibiotics.
Just letting you know some of the "fun" of this disease.
Oh, and mom is incredible stressed by the latest turn of events over the weekend. I don't know if he will even continue with treatments, or just let it take its course of destroying his body. Mom hasn't slept in 2 nights.
Thank you to all who participate and donate to this cause. I am so glad I got to know Dan through private messages, and to discuss some of this before the disease took his life.
Are you guys in Alaska now? Did the pool get completed? Are you back here for the 1st football game?So sorry about the bureaucracy et al. Hang in there you two and don't give up.
Love - Ira and Maggie
Are you guys in Alaska now? Did the pool get completed? Are you back here for the 1st football game?
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At Aderra. We drove up yesterday, driving back tomorrow. Coming back on the 17th for a few days and then to AK. Lunch? Just got back from Oregeno's. Had minor surgery last week at Mayo. Was clear for a year. Very scary while waiting for lab results. Good results were a great relief.
Sorry to hear this Llanz.I'll be there next year for sure as it coincides with a major HS reunion.
As I type this, my son, who has suffered for many years from Crohn's, is supposed to have another colonoscopy on Wednesday, and at the last minute, Cedars Sinai is requiring him to get a COVID vaccination (messaged him Friday night). Just so you understand the "outside" issues all patients also endure. It is not possible to get said test and have the results before he has to prep tomorrow. (oh, they won't take a rapid test, and expect him to drive to Cedars which is at least a 45 minute drive). Also when you have this disease at the level my son does, it is very difficult to go out at all, as you need to be close to a bathroom. All decisions involve this. So to drive 45 minutes right now to get a test that probably will not be back in time may not even be possible in LA for him. So I am guessing he will have to cancel. This adds stress which is one of the worst things to do to a Crohn's patient. Stress exacerbates the disease. He is constantly having to stress over medications, tests, appointments, trying to reach the Dr. He is 38 years old, and will probably need a colostomy bag in the next couple of years. He has had 2 surgeries already, and the last one was not successful. He has tried every medication they have, and right now is off of all meds so he could get vaccinated.
To add to the stress, he has to get a TB test (a special one) to go back on medication , and he has always tested positive to this test. It is a false positive, and even the infectious disease Dr. that they send him to knows it from a chest xray, but he is required by federal law to treat him for TB. So he takes 3 months of an antibiotic, that he does not need. Oh, and we know one of the side effects of antibiotics.
Just letting you know some of the "fun" of this disease.
Oh, and mom is incredible stressed by the latest turn of events over the weekend. I don't know if he will even continue with treatments, or just let it take its course of destroying his body. Mom hasn't slept in 2 nights.
Thank you to all who participate and donate to this cause. I am so glad I got to know Dan through private messages, and to discuss some of this before the disease took his life.
Thank you to you and your family for all the work that goes into planning the event and your dedication to the cause.Thank you for the recap Tomcat.
It wonderful to see all of our friends and family continue to turn out to an event to honor my father, Orangeyes, and to raise money for the CCFA.
I would like to add that we recognized DCCuse and his recent health issues.
As well with my close friend who lost his father the morning of the tournament after a courageous fight against pancreatic cancer.
I would like to especially thank Joyce (cto) who’s generosity continues with her donation of her court side seats. Along with the Collier’s who were the winning bidders. The seats are the big ticket item every year and this year was no exception.
I would also like to thank Tom Emery (temery) who made a very large donation to the cause.
This year we raised an astounding $5,140 which will go to the CCFA. This was the 3rd highest total in terms of money raised in the 8 years of the event. The 8 year total now stands at $34,582.27.
Please save the date for next years event which will be held at Foxfire, on Saturday, August 6th at noon.
Again, thank you to everyone who continues to make this event possible.